Tuesday, February 03, 2009

He is the Healer

We started off with a little excitement today. Harper had to have a MRI so she and I got to ride on a hospital bed down to radiology (which is about 5 miles away from our room). Harper LOVED the ride - she smiled and laughed the whole way there.

Then I got to give her another bath. She HATED it - but she smells pretty and feels better.
Look at this mad little face
Since she lost all of her wires but the nose wire - we put her in a little gown and hat after her bath. Nothing better than a freshly washed baby in their pj's. :-)
I got a package from Leach Company here in OK - they sent me several wonderful things for Harper like a nursing pillow and this shopping cart cover. This will be wonderful because we have to be SO careful of germs. Harper won't even get her first trip to Wal-Mart for several months. We have to keep her at home for a while and we won't be able to have visitors. She can't be around anyone - especially children. We just can't take the chance of her getting sick.

If you could please continue to keep Harper in your prayers please - our doctor and a pediatric neurologist both came to meet with us today about her MRI separately. There is some small concern about a lining in her brain. They are not overly worried but of course my heart has been in my stomach most of the day. Harper is very alert and her motor skills are all good. A physical therapist met with her and thought she looked great. But of course I can't help but be worried that something is wrong with her brain. They want us to come back in a few months to evaluate her development. We are trusting that God who formed her in my womb and knew her before she was conceived will allow her to be well.
We have this awesome CD and Harper has listened to it over and over. There is a verse inside the cover that I love and I'm praying this for Harper tonight:
The Lord your God is with you,
He is Mighty to save.
He will take great delight in you,
He will quiet you with his love,
He will rejoice over you with singing.
Zephaniah 3:17

260 comments:

«Oldest   ‹Older   201 – 260 of 260   Newer›   Newest»
Kristin said...

She is PERFECT, no matter what. You all remain in my thoughts and prayers. 2 Corinthians 5:7

3 Peanuts said...

So wonderful to see the Lord's hand at work in Harper. I will continue to pray for her and for your family. Love the smile on your face as you care for your daughter.

Kim

Anonymous said...

Will be praying for Harper and that God will heal her of any ills. Praying for mommy and daddy too!

If you haven't used the baby lotion with lavendar yet, it is a must try. Especially after bath!

Wishes for a happy, healthy day!

Leslie

Shannon said...

Kelly,
I stumbled apon your blog a few weeks ago..right after Harper was born and I've been reading it everyday and praying for you all. I hope Harper continues to improve. She is such a strong little girl!

Thank you for sharing your experiences with us! Your strength is truely amazing. I even mentioned you on my blog! :)

http://confessionsofatrueshopaholic.blogspot.com/2009/02/lemonade-anyone.html

AW said...

Kelly, I've been just a recent lurker, but had to finally comment. Your little girl is truly a beautiful baby - I know you're proud!

And this Sing Over Me CD was the only thing to calm my colicky baby. He's 17 months old now, but the first 10 weeks of his life were pure hell. But a friend gave me this CD and I'd play it ALL the time. Not to mention, the words in the praise songs brought me that much closer to our Heavenly Father.

So glad you have it!

Doris Glass Heckert - Jackson's Mommy said...

We have that same cart cover and LOVE it---by the way, Jackson had the same thing with his brain and is doing fine as far as motor skills, development, etc. at 2 years old...praying for all of you

Rachel H. said...

We will continue to pray for Harper! She is so beautiful!

Anonymous said...

That would be such scary news about the MRI. I will continual praying for Harper. That was a cute photo of you guys on the ride in the bed. Harper is such a pretty baby. We all have so much to be thankful for but when a baby is having a hard time thats when it gets so hard to make sense of it all, God is still on the throne just like he was the day little Harper was born. In sprite of all this I hope you feel the love of our Lord with you at all times. Love & hugs to you & your little family. Karen Barnes= Jessica M's mommy

Anonymous said...

What is wrong with the lining in her brain? Just wondering? Is it something that they can control with medicine or will she outgrow it? I was confused when I read your post, just thought I would ask.

MakeLifeDelicious.com said...

Zephaniah 3:17 has been my favorite verse for many years. I discovered it while in college doing a Bible study. That verse has brought me peace and comfort through many times in my life. I will join you in praying that for little Harper. Love, Sunshine

laura said...

I will be praying for her development and for all three of you to be able to rest peacefully in Jesus' arms. She is beautiful!!

Jennifer said...

She is sooooo cute! Continued prayers for Harper!
If you could also pray for a friend of mine, I would soooo appreciate it. She delievered her son yesterday at 25 weeks. He weighs 1 lb 12 oz and is 13.5" long. She has a 4 yr old son and two other babies in heaven. Her blog address is: www.salzafamily.blogspot.com
Thanks!

lizziefitz said...

kelly, I still wish I could keep away all the bad germs from my kids. You and Scott just have to protect Harper the best you can. Friends and family will understand. You all have been through so much, no one wants you to have to endure any more. Hugs and Prayers, Elizabeth PS Don't worry about trips to Walmart, that is why there is internet shopping:)

Buy My Crap said...

I am sending good thoughts your way. My son, Ferris was born with Pulmonary Hypertension. We came within minutes of losing him, and the time in the NICU was some of the hardest I have ever done. When he finally was able to come home, I was a nervous wreck (and I have 3 other children) I would watch him breathe, panic over every little thing, and fear that the hypertension would come back (not that it can) I just wanted to let you know, he turned two last saturday. He is amazing, and vibrant and resilient, and has no idea how much heartache we went through with him. Everything is going to be ok for you. If you ever need to chat. You can find me via my blog. All the best to you, your husband, and sweet baby Harper.

Anonymous said...

Continued prayers are still coming to Harper, you and your family from NC!

Much love,
Wendy & Grace

Stacy said...

Harper is so beatiful! We'll continue to pray for her!

Walking in the rain said...

I too love this verse! it's one that i say to my children before bed to remind them that the God whoe created them loves them and rejoices over them!

~g~ said...

I am so happy to see Harper's improvements over the past couple weeks. Your optimism and faith are an inspiration! I am expecting a baby in April, and at first I had a hard time reading about Harper's challenges. It broke my heart just thinking about all of the things that can go wrong and to see how one day you were happily making cute cookies, and the next day the whole world was turned around. Little Harper truly is a blessing, thank you for sharing her with all of us.

Cori said...

She is so beautiful! I love the sleepy pic of her in her pretty gown & hat.

Continued prayers for your sweet baby girl.

Anonymous said...

Let me start by saying that you have the most adorable little baby girl! I have been following your blog for quite sometime now and have been amazed at the prayers and kindness from people! Way to go LOGs(lovers of God)! I am writing this message to ask a few tips from you. I have a friend whose mother was just diagnosed with a brain tumor and will soon be recieving treatment at MD Anderson. They are a wonderful family and are needing many prayers. Her daughters have started a "prayer blog" and after seeing the blesings you have recieved I wanted to fancy theirs up a bit and maybe get the word out. Anywho, I was just wondering who made your little link icon thing and how exactly you do that... If you can sometime between feedings(YEAH) and baths(poor Harper) you could send me a tip. I am going to put a link to their blog below and maybe you could check it out and say a prayer! Thank You so Much!
oh and I will put my email so when you can you can get back to me that way! highfilllisa@yahoo
http://prayersfordoreen.blogspot.com/

CyndiAKADisneyqueen said...

Love seeing that big happy smile on her mom's face.

Rachel said...

I love her angry little face during her bath. She is so precious!

Anonymous said...

I love the photo of Harper & you rideing in the bed. She is so pretty. I will contuine to pray for Harper's health. That has to be so scary, but I believe with everything in me that the Lord will bless her with good health & keep her safe as she grows up. Hope you are getting the rest you need also Kelly. I can only image how hard this all has been, but know you guys are being prayed for. Much love & hugs to you & your family, Karen Barnes= Jessica M's mommy

Lindsay_Barker said...

I dont even know where to start. This blog has done nothing but strengthen my love for our Lord and make me want to cry and smile! I am marrying Stacey Trucks' brother and she is the one who showed me this. She says that Harper is going to be the girlfriend of my little Angel, Conner Clay. He is my precious little 8 month old boy that was also in the NICU for a week. Yes, we were very blessed with him only being in there for a week, but i was so scared. I definitely know how you feel and am praying for Harper, you, and Scott. I know that you are a strong woman to deal with these kinds of things and your love for God and your daughter will make everything work out! God Bless and maybe one day soon Harper and Conner will have their first date! :)
Lots of love for you and your family!
Lindsay, Clay, and Conner Clay

At Home With Amy said...

What an adorable little angel you have there. Harper is a true miracle and blessing from God. I pray that God continues to restore Harpers health and that you have a bright and happy future with her without any complications.
Blessings,
AMY

Your Gospel-Loving Friend said...

THat is the same verse I pray over Noah (our 2 yr old) each time he goes to bed... he too had a rough start to life & didn't know if he would make it but God healed him! We are praying for Harper!!!

BTW that shopping cart cover is awesome! I had one but it didn't have something to block the sides off too! We had to keep ours away from people/germs for quite awhile.. it can be a struggle but in the long run you will be glad you did what's best for your angel!

Anonymous said...

Oooh, I just love seeing Harper pictures! She's such a sweetie-pie! And you two are such awesome parents. She's so lucky to have you both, and such doting grandparents, and so many wonderful friends. Not to mentioned God's incredible blessings on her. What a lucky little girl! Still praying in Virginia!

The Combs 5 said...

Hello...you don't know me...and not sure you'll ever even get all these read! But i just wanted to say i know most of what you are going through. My son had to spend 3 weeks in the NICU there at St.Francis a year ago about this time. It all seems like such a blur right now...but your page brings so many memories back. I wish i would have blogged it all! It was the most trying time of our lives...but God took care of us. The nurses and Dr.'s there are all so wonderful. We also stayed at the Ronald McDonald house...it was so nice to be able to stay so close, even though it still felt like so far away! I enjoy reading your blogs. And just know that God will take care of you. Our thoughts and prayers are with you and your family. Harper is just a doll. Love in Christ~Mollie Combs

Heather said...

AH, a clean baby in their PJ's...there IS nothing better! I will be praying for Harper's brain specifically...but I am believing in faith that there is nothing wrong. Can't wait til you are back home!!!!

LYNDEE said...

Hi kelly i just started a blog and have been following yrs for awhile no, i know yalls life is very busy with sweet harper, and please know that our family is praying for her quick recovery so u can take her home and love on her!!! she is so precious, my husband said, now thats a beautiful baby... i agree, hope to chat with u soon

Megan L Hutchings said...

As always I will continue to pray for your beautiful angel!!!

She looks so peaceful sleeping ;)!

Samantha said...

Still praying for that ever-beautiful baby girl!

Her outfit is sooooo sweet!

Sam

Sasha said...

LeachCo is based in my hometown!

Still praying for your family!

Katie said...

I just found your blog today, through clicking on the button on someone else's blog. I am so glad I did. I have been reading from January on, and have been in tears the whole time. Some shed for the pain your family has gone through. But mostly because of the wonderful way God is working in your life and Harper's life, and changing the lives of others through it. What a blessing. I will be praying for you. Thank you for blessing me. I'm looking forward with you to when you can take your precious girl home with you! Jesus knows when, and how, and praise Him for it!

Jake and Heidi said...

sorry I am new to your blog and don't know much about what is wrong with Harper. She is absolutely beautiful by the way! I think about her a lot. I had a baby..my sweet Abbie who was in the NICU just a week but I do feel like I have a small pin size taste of what it is like to go through what you are going through. It is amazing to watch her get better and better each day. What exactly is wrong with her? I see a lot of notes about prayer groups etc. what faith are you? and last but not least....Thank you....For sharing her sweet face with all of us!

Unknown said...

Continuing to keep Harper as well as you and the rest of your family in our prayers. She looks so precious in the pj's!

I also wanted to thank you for keeping your blog updated even though I'm sure you are super busy! I can't remember who I found your blog through, but I am thoroughly obsessed now :o) From reading it, I have re-assesed the way I think about my own life in a much more positive way. Your faith is astounding!

Jacquie said...

I'm still praying for y'all.

And Harper in that gown and hat... can we say "PRECIOUS"???

Sarah said...

That's some mad face (but still cute)!

RandB said...

We say that verse over our children every night. They love it and our 3 yr old now says it with us and sometimes over his baby sister too. Precious.

The Garners said...

Continuing to pray for y'all! I think of you numerous times a day!!! Can't wait for you to get to take that beautiful girl home with you!

Ruthie said...

I just love that little mad face! What a cutie. I'll be praying today specifically about the MRI results.

Ruthie

Amy @ Keep'n The SunnySide said...

Harper is just gorgeous! She looks so healthy & much happier without all the wires. Praying everything goes smoothly from now on. Her little brain is going to be just fine!

Anonymous said...

A hint from one mommy to another. Maybe when you bathe Harper, it might help if you wash and dry one part at a time, while keeping the rest of her comfortable and covered. That way she doesn't get chilly all over. That helped end a lot of crying (both baby and Mommy)at our house!
I've got to confess that I was a bit worried at all the visitors you've had. Even if they don't touch Harper, you touch them, and then you touch Harper. I was glad to hear that once you are home, visitors will be limited till Harper's had a chance to get settled in and is solidly doing well. Both my babies began their lives in NICU, and we were really cautioned about germs, etc.!
Also, one more piece of advice if you'd allow me - If you're not already doing this, keep a medical log - all tests, meds, O2, scans, therapies, etc. It will be invaluable when you return home and docs there start asking you questions. And if you don't understand something, ask - we always found the nurses to be huge sources of knowledge. We continue to pray for Harper and ask God to bless you all.

Preppy Girl Meets World said...

Kelly, I have been reading your story and want you to know that you and your family are all in my prayers. Every day you and your grace and dignity continue to amaze me.

Stacie said...

you two look great! still praying for all of you!

Rachel Dominguez said...

I will continue to pray for Harper that everything will be perfect for her!~

He pictures are just darling!

Anonymous said...

Kelly, I'll continue to pray for Harper and more of God's miraculous healing and blessings for her MRI results. She's looking beautiful! I'm pretty sure she couldn't be any cuter!

I also wanted to share with you a tool that will help you turn your blog into a great memory book for Harper. I know you mentioned that you wanted to make sure she has a record of all the events, prayers, blessings, etc., of her first few weeks. My first disclaimer: I don't work for the company I'm about to recommend. :) But I have used them on multiple occasions, and absolutely love them!

The website is called Blurb: http://www.blurb.com -- you download their program, and it works much like other online photo book creation sites, except you don't have to be online to use it, and you can use your own fonts (not the pre-populated stock fonts). The coolest feature though, is its "Blog Slurp" feature. Basically, you point it towards your blog, and it "slurps" all the posts and brings it into your book. Then you can choose from multiple sizes of books, hard cover, soft cover, full color, B&W, etc. It's fabulous!

I've used it to print my digital scrapbook pages as well as a year's worth of blog entries and the corresponding photos. It worked beautifully and I'm just thrilled with the final product. As a Mom -- you don't have time to publish it all yourself, so it's a HUGE time saver.

Thanks for contining to update us! We'll all continue to pray.

Polly & Steve said...

Harper looks wonderful, she will be in our prayers! Lots of Hugs and kisses (germ free of course haha)

Anonymous said...

Iam so happy havent had time to get to your site and iam so happy for yall and still preying for harper

Staci said...

Even mad, she's too cute for words!

Bec:) said...

Hi Kelly,
May you be strengthened from the one who gives strength. She is in the best capable hands.
Praying daily.
Bec Harper

Megan said...

Harper is beautiful! You look like an experienced Mama bathing her!

Still praying!

Anonymous said...

MOMMY2VIN,
Sweet Kelly,
Beautiful, beautiful, beautiful! She looks so peaceful resting in her gown! How precious!
Danielle

Lulu said...

Continuously praying for Harper. She is such a doll, Kelly.

Anonymous said...

Kelly,
I am thrilled for your family. Although its over due, I can only imagine how wonderful it will feel to take Harper home and just be the family you have always dreamed of and prayed for. There are not enough words to describe how ultimately happy I am for you. God bless the three of you!

Love
The Hyso's

Makila said...

Zephaniah 3:17 is the exact verse we dedicated our third sweet one, Lydia, at her Infant Dedication last May. Love the verse.

Browns said...

She will be great--just keep the faith. God is Good! Leach Co is in Ada OK and that is where I live--small world!

John and Joanna said...

Kelly! I have kept up with Harper since she was born! What an amazing story.... how Great Is our GOd!! AMen!!!

She is adorable in everyway!!! I know that God has huge thigs for that sweet girl!!!

Ya'll take care and enjoy bringing your sweet baby home! You and your husband are terrific parents!

God bless you and your sweet family!
Joanna Parrish!

Unknown said...

I'm so happy that things are going well for you and your family. I have one of the shopping cart covers and I LOVE it. I also reccommend a sling carrier if you don't already have one. My daughter loves hers, as do I.

~ Laurie said...

I love that CD!! We listened to it for a week straight when our son spent it in our childrens hopsital with suspected meningitis. He was 11 weeks old. I can not listen to it without tearing up and thinking of him so sick.

«Oldest ‹Older   201 – 260 of 260   Newer› Newest»