Praise Jesus for He is good!!! Scott just called to tell me that he just went to see Harper and the nurse said she is not even on the list for bypass (ECMO) because the doctor thinks she is responding so well to what they are doing she may not even need it. We were told in not so many words yesterday that she may not survive at all and because of so many prayers all over the world - she is improving hour by hour. We have had so much kindness shown to us over the last 24 hours - I can not even begin to tell you. Scott has had several people that we don't know but who read our blog come to see him and even brought him things. He just called me crying because he couldn't believe the kindness we have been shown. It's so overwhelming. Our whole family has cried so much because of the overwhelming kindness of friends and strangers. It certainly has encouraged us to do more for others ourselves.
5:30 a.m. Saturday
I realize I should be sleeping but it's just not coming and you know how hospitals are - I get woken up every minute anyway. The doctor from the neo-natal unit in Tulsa (yes - it's St. Francis) called me at 4 to let me know Harper was there and she was stable. They are running tests on her heart and her brain and doing a few more things before they can start the bypass. Shortly after - Scott and his parents got there and they got to see her again. I have to say that I have never loved my husband more than I do right now. He has been my rock. We have shed more tears in the last 8 hours than we probably have our entire lives but we also know that we want God to get all the glory and praise and honor in whatever happens in our baby's life.
I have such a peace about her being in Tulsa and it was just confirmed to me as I read the comments and a nurse from pediatrics said the nurses there had already been praying for us. And I just recieved an e-mail from someone who went through an almost identical situation and her daughter is now a healthy 3 year old. Thank you Jesus for sending me all of these encouragers and prayer warriors. It is NOT by accident that so many of you have found my blog and are now praying.
12:30 a.m. Saturday morning
Change of plans - AR children's hospital was all booked up so they are about to fly my baby to Tulsa. They are going to be doing a heart/lung bypass on her and the last time we spoke with the doctor - he gave us more hope. Her heart is just fine. She has pneumonia in her lungs and it's just very, very serious. We were able to go up and see her and touch her. They have her put under and paralyzed so she can't move so they can treat her. But she's just beautiful. She's BIG - but beautiful! ;-) I told her we have so many people praying for her and she is going to live and come home to wear all her pretty monogrammed dresses.
I have been sitting here crying about all the people we have praying for us. I can't even begin to tell you what that means to our family. It was what is keeping me from completely falling apart right now. I have comfort in my Jesus. He will never leave me or forsake me. I don't know what His plans are........whether we will be able to keep Harper on this earth with us or not - but I know that I know that I know that He is good and He loves me and He is holding my hand right now.